Wasted Time

Everything is still going very well. The only problem I have is communication breakdown at the hospital. Sometimes it seems like in one hear and out the other. Michel and I wind up spending extra time at the hospital because of delays from the blood bank and other unknown reasons. The nurses tried to expain the slow paper trail but I think its a cover up. We do not have much to do otherwise so its not really a big deal. I think it just feels a bit more comfortable at the apartment than at the hospital. My counts are still going crazy so I am still receiving blood products very often. This means long hours at the hospital. OH JOY! But don't forget, I still have that smile I always talk about!

Day 30 - Goin' to work

Daily appointments have been keeping me busy. It kinda feels like going to work. I usually spend about eight hours a day receiving the necessary fluids and blood products. I'm just glad I'm not in the hospital. The weekend is coming and the nurses are talking about giving me the weekend 'off'. I will still have to infuse my fluids at home though. I can't wait for this to all be over. Everyday is a process. Fatigue has set in. Lately I have been having trouble walking as little as a fifth of a mile. That's alright though. I still have my appetite and a smile.

Day 21 - Free at last!

I was discharged from the hospital yesterday. It was very exciting to finally not be connected to an IV pole or to record my 'intake' and 'output' anymore. Also, a nice shower was very comforting as well. The pressure at the hospital was very bleak. A comfortable bed was much needed as well. I woke up this morning very refreshed. I will be going to appointments at the clinic everyday for the necessary infusions, but the feeling of freedom is wonderful. I feel like a major step of this process is over.

On the way out!

My white blood cells are starting to recover! This means my new bone marrow is beginning to engraft. The doctor says that I may be discharged from the hospital on Tuesday or Wednesday. I have been doing really well, but I have a little fatigue setting in. This is probably from the neupogen I have been receiving daily. This is used to help the engrafting process. The only thing left is to switch from IV meds to pills. Then after I am discharged, I will be in Houston for another 70 to 80 days, going to appointments in the clinic.

Sept 17 - My 28th Birthday

Today was a good day. My parents arrived yesterday in order to spend time with me on my birthday. It felt really good having them around. I woke up with a sore throat, but that didn't stop me from eating cake though. I received a lot of cards that really cheered me up. I normally go out to eat whatever I want as a tradition for my birthday, but unfortunately my throat was bothering me too much. Ironically, I decided on some soft tacos from Taco Bell. Overall though, I had a great day.